Living with a chronic illness can be an arduous journey, and unfortunately, the experience with the healthcare system often exacerbates the challenges faced by individuals. For those grappling with conditions such as diabetes or cancer, the process of obtaining crucial medical tests can become overwhelming. It often involves traversing various clinics, enduring long wait times, and undergoing a series of bureaucratic procedures. All the while, valuable time slips away without a definitive diagnosis or an effective treatment plan.
It appears that I’m experiencing some concerning symptoms, including noticeable memory loss. I’ve started to perceive the passage of time differently, with 12 minutes feeling like just 1 minute. Even waiting at the doctor’s office for only 3 minutes feels much longer. It’s as if my mind is gradually shutting down, which is quite alarming. Additionally, I’ve been facing difficulties in recalling recent events; it’s becoming increasingly challenging to remember what happened just yesterday. Despite being in my late thirties, I find it disconcerting to be confronted with these issues. Consequently, I believe it would be prudent to consult a physician and request a brain scan. I suspect that there might be a connection between this neuropathy nerve condition and a misplacement of the epidural during a C-section I underwent six years ago. I can’t help but wonder if this misplaced epidural has caused further complications, potentially spreading the neuropathy infection to my brain. Such anomalies can only be adequately explained by taking into account this hypothesis.
Throughout my life, I have encountered numerous challenges when it comes to my health. Medical experiences have been quite overwhelming, starting from the moment I was born. It was the year 1983, and the medical field was not as advanced as it is today. Unfortunately, during my mother’s labour, she suffered a stroke, which could have been avoided had she been given a cesarean section. However, the doctor decided to use forceps, resulting in an injury to my right eye. As a result, my right cornea became misshapen, leaving behind scar tissue and causing further complications such as astigmatism, and partial blindness.
During my formative years, I embarked on a challenging journey within the realm of healthcare. Instead of finding the necessary and appropriate care, I encountered frustrations stemming from misdiagnoses and an overreliance on medication. At the tender age of just eight, during the late 80s and early 90s, I was prescribed Ritalin, a widely popular drug primarily intended for treating ADHD and narcolepsy. However, my symptoms did not align with either condition. This firsthand experience underscored the utmost significance of accurate diagnoses and personalized treatment plans for individuals across all age groups. Reflecting on the past, I realized the importance of thoroughly investigating and questioning medical interventions at an early age. It is crucial for children to develop the skills to critically analyze information and challenge established notions, as not everything is unquestionable or infallible. Why is it important to question? Because improper medication can cause severe and hazardous effects on the brain and other organs. I wasn’t properly diagnosed until age 10, and even that I do question.
Upon reflecting on my past experiences, I strongly suspect that I had Juvenile Diabetes, even though I was not tested for it as a child. It is unfortunate that doctors often dismiss the possibility of diabetes in children who don’t exhibit obvious symptoms. However, it is crucial to recognize that diabetes can manifest in various ways beyond frequent urination and weight gain. It is disheartening that not everyone is aware of the diverse symptoms associated with the condition. For instance, did you know that diabetes can contribute to mental health issues such as hypersensitivity, depression, ADHD, and fatigue in younger individuals? It can even increase the risk of developing dementia and Alzheimer’s disease. I want to emphasize that I was only 10 years old when I was diagnosed, or so I presume. At that time, my symptoms primarily manifested as hypersensitivity and depression, which made me emotionally vulnerable. This was made even more challenging by my overbearing mother, who often failed to understand the fragility of my emotional state. Please note that I do not intend to speak ill of her, but rather emphasize the importance of considering the impact of pushing someone too far, as it can lead to mental and emotional distress.
I often reflect on the journey of my health and wonder if early detection could have made a difference. Looking back, I wish my mother had been more proactive in seeking a diabetic test during my adolescence. Maybe, just maybe, it could have provided insights and potential avenues for a more normal life. Nevertheless, I’ve come to accept the challenges that life has thrown at me. It is disappointing when medical professionals overlook thorough investigations, disregarding the potential for alternative explanations. As a child, I dealt with numerous ailments, including contracting chicken pox multiple times, battling whooping cough, and enduring various colds and flu. These experiences have made me ponder why my immune system seemed vulnerable, apart from diabetes. It is a question that continues to intrigue me as I navigate my health journey.
Then there was the issue that happened six years ago: the epidural misplacement that has caused unending pain. I can’t move on cold or rainy days, but it is semi-bearable in the summer heat. It is still painful, though. Not to mention that the epidural, bupivacaine mixed with dextrose injections five times, and no insulin to counteract them made me insulin resistant and triggered the neuropathy war in my body. What were the doctors thinking when they did that to a diabetic patient? Why did they put me on standard protocol and not peripartum protocol? Just, why?
I’ve come to find that- Dextrose has been gaining attention for its potential role in promoting the healing process of surgical wounds, particularly in the case of cesarean sections. Some research suggests that the application of dextrose may help in speeding up the recovery of patients after surgery. However, it’s important to note that the use of dextrose for wound healing is still a topic of ongoing research. However, using Dextrose on diabetic patients IS NOT recommended. Yes, I’m dealing with a lot of guinea-pigness, in the medical system. (I’m the guinea pig).
Now I have to deal with Retinopathy, Dealing with this condition requires me to undergo injections directly into my eyeballs, accompanied by laser procedures to cauterize the abnormal vein growth. It can feel quite unsettling to be awake during these medical interventions, akin to scenes from a suspenseful movie. I also want to highlight that these procedures are performed on both of my eyes. Despite the challenges I have faced, I try to remain resilient. Yet I’m facing a very many dilemmas.
The healthcare system can be challenging to navigate, especially when it comes to insurance coverage. Many of us have experienced the frustration of having important treatments or devices denied. This happened to me recently when my doctor recommended switching my insulin medication and obtaining a new hypodermic glucose tester. Both requests were denied by the insurance company.
The medication my doctor suggested was a combination of Januvia and Metformin, known as Janumet. It would have simplified my medication routine and potentially improved my overall health. Additionally, the new glucose tester would have allowed me to monitor my blood sugar more frequently and with less discomfort. Both of these changes would have significantly contributed to maintaining a healthier life.
It’s disheartening to feel like we have to fight for our basic healthcare needs. As a parent, I understand the importance of staying healthy for our loved ones. My child is my greatest motivation, my Rainbow Miracle child. I went through a difficult pregnancy and a life-threatening cesarean section to bring him into the world. I am determined to stay alive and be there for him.
Lately, I’ve been feeling increasingly perplexed by the way my body is behaving. Despite my efforts to prioritize my health, such as adopting a vegan lifestyle to manage my alpha-gal condition and diligently preparing my own nutritious meals, I can’t seem to shake off this overwhelming sense of deterioration. It’s disheartening to witness my tremors, which have evolved into what feels like waking seizures, and find that my mobility is severely compromised, leaving me trembling with each step. I can even feel my chest area vibrating when I speak or breathe as if I’m slowly becoming a mere shell of my former self. The most baffling part is the inexplicable rapid weight loss, despite my blood sugar levels being well under control. Clearly, something deeper must be at play, and I can’t help but yearn for answers that will shed light on this puzzling situation.
Through this ongoing journey, one pivotal factor that has repeatedly emerged is the issue of Epidural misplacement. It is worth noting that the challenges I encounter today were non-existent prior to the administration of the Epidural. To validate this hypothesis, I need to consult with experts in the fields of endocrinology and obstetrics/gynaecology. By delving deeper into this theory, supported by the consistent presence of symptoms related to neurotoxicity exposure, I am not only advocating for my own well-being but also for the health and welfare of our son.
It is crucial for me to gather these answers to ensure that both my son and I receive the appropriate and necessary treatment. I sincerely hope that my hypothesis and theory are proven incorrect, as the implications are significant. In the unfortunate event that my suspicions are indeed true, it may be necessary to pursue legal action against the institution that provided me with treatment six years ago. It is clear that such a facility should no longer be in operation, especially considering the recent controversies surrounding HCA Hospitals. Dealing with medical negligence is a delicate matter, and finding a lawyer who is willing to handle discovery cases can be challenging. However, I remain determined to seek justice for the past events and ensure that this does not happen to anyone else.
The Lost Voice Of A Lark 
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